has found that if she gets Dayton to come to
only ever going to learn what she would learn
the solution, to make her feel like it was her
but it was important that she learned the
own idea, it goes smoothly and she can calm
peer relations and the responsibility of the
down faster. Loud noises can also set Dayton
classroom setting.
off because Williams syndrome kids have
Dayton is currently working as a teacher’s
sensitive hearing. People affected by Williams
aide for Jr. K through the School to Work
syndrome crave attention and acceptance, even
program. This brings her joy and she loves to
more than people without it. They thrive on the
do it. She grades papers, reads to the kids, tells
attention and words of affirmation. They want
them stories, and takes them to snack time.
to make people happy and want to help in any
Her favorite thing is the interaction with the
way they can.
kids. She’s also learning life skills such as filling
Dayton has been fortunate to not suffer
out a time card, the responsibility of having a
from too much bullying as most people know
job and all that is entailed with that. Marcia
Dayton with her mom.
the family and Dayton, herself. There have
also makes sure to teach life skills in the
been instances and it’s hard on Dayton who
house. They have never treated her differently
just wants the acceptance from people and it’s
and she has all the normal chores any kid
also hard on Marcia. “When you know your
would have. A part of Williams syndrome
kid has been through hell and back; I almost
is a need to please people so it’s not hard for
lost her when she was born. When you know
Dayton to want to help out in any way she
everything you’ve been through … all you
can. Dayton lives at home currently but she
want to do is save her and to have her not feel
wants to be more independent. She has some
bad. And you can’t. And when you see a kid or
of the skills to do so but because of her trusting
even an adult, making fun of them…you just
strangers she would need to be in a facility.
don’t even know. And this kid would give you
Her awareness of strangers is the biggest
anything.”
thing about her independence. An example
The biggest thing that is currently hindering
is, one time when Dayton was walking home
Dayton right now is her prolapsed valve. The
from the bus there was a car that was circling
doctors are trying to move it along as long as
her. Someone in the community who knows
possible because once they replace it with a pig
Dayton and the family saw this and followed
Dayton with her mom and siblings.
valve, she would need surgery every 10-15 years.
her the rest of the way home to make sure she
As she’s only 19, to expose the heart that many
got there ok. They let her walk and made sure
times with that much scar tissue would be fatal. Her valve is currently
not to bring attention to anything so she didn’t get scared, but made
opening differently than ours so when it opens it is throwing blood
sure she got home. “That’s wonderful to me that people would do that
to the top of her heart which is enlarging her heart. So her heart is
for her.” Plus, Marcia isn’t quite ready to go to that step because Dayton
working overtime. They are currently going to reevaluate everything in has so many opportunities through the Bon Homme school district.
March where they want to do an EET on her and look for alternatives.
Here soon she has an individual education plan to discuss her future.
There has been talk of a transplant but the team of doctors wants to
Marcia is hoping that instead of attending classes and doing School to
make sure they look at every option to take the best route for Dayton.
Work that she will enter the work force. This would probably involve
This all brought about a funny story though. Dayton was recently at
hiring someone to transport her to and from work but it would give
the Omaha’s Children’s Hospital to get her heart catheter. She was
Dayton a little more freedom which would be a win-win for both
grandfathered in because her doctor there doesn’t want to let her go as
Marcia and Dayton. Plus, with Dayton’s current health issues it worries
a patient so she was the oldest patient in the hospital. After the surgery Marcia to let her go away from home. It’s also hard because Dayton is
when Dayton was coming out of anesthesia she was asked how she
trusting and a giver, so she’s not the best with money.
was feeling. Her doctor happens to be fairly good looking and Dayton
Music is important to Dayton. Dayton learned a lot through
responded with, “all I know is there’s a hot doctor standing by my bed.” music and it also has a very calming effect on her. Plus, she’s pretty
All of this may seem like Dayton may not have a full life but she
knowledgeable about it. You can ask her who sings pretty much any
would assure you that that’s wrong. Dayton goes to school, she works,
song and she can tell you. She loves to sing and her favorite song
and she has all the normal responsibilities that her siblings have.
currently is “Attention” by Charlie Puth. She is very social and has a
Throughout school, Dayton has had a teacher’s aide. As she was getting high vocabulary. She loves to use big words which Marcia tells me is
older and going out for recess, Marcia wanted an extra set of eyes to
common for Williams syndrome; as is gravitating to adults instead of
make sure Dayton didn’t wander off. Marcia bucked the school a little
her peers. She does have a good group of friends her age that help her
bit as Dayton got older because Dayton was being pulled out of her
out and are good friends to her. Dayton told me that she wants her
normal classroom into a one-on-one time more often than she was
job to be something working with kids. She enjoys teaching them and
spending time with her actual peers. Marcia wanted Dayton to be
having that interaction. They are generally happy and they get excited
in the classroom with her peers more. She felt the one-on-one time
to see her which makes her day. Her favorite food is hot dogs and she
was depriving Dayton of learning the social skills and relating to her
doesn’t like sadness. She told me her super power is cheering people
peers She also felt it hindered her learning because she didn’t feel as
on. “My instinct is to help people. Like when mom’s having a bad day I
challenged in a setting where she had nothing to compare to. Marcia
try to cheer her up. That’s what I do best.” Marcia told me, “she puts on
researched Williams syndrome and classroom settings and wanted
a cape and she’s going to save their day. There’s probably not a person
her to have that challenge and those peer interactions. Dayton was
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